The Autistic Freelancer :: Autistics Speaking Day 2011

I have been running my freelance web development business for over 15 years, the last 8 of which have actually involved a business license, paying taxes, and making money. Each year, I do a little  better than the last.

Running a business can be challenging to everyone, and as with most things, can provide extra challenges for autistic people. Also, as with most things, we may have skills and abilities that give us a greater chance of succeeding despite the extra challenges.

In honor of Autistics Speaking Day 2011, I will write about my personal experience of running a business with these challenges and benefits. I have been very lucky and have had a lot of help along the way and would be very happy if I could help someone else looking to follow a similar path.

First, a  few words about luck:

I do not have the business skills to run my own business. Before Karen was my billing manager, I often forgot to bill people and could not keep track who had paid even though I use software to keep track of such things. Software is useless if you forget to supply the needed data. Every month, Karen makes sure that clients are billed and follows up when someone has not paid. Needless to say, this has had a huge impact on the success of my business!

I have also been lucky to have a community of web designers and developers that send work in my direction. Most of this community is in the San Francisco Bay Area and I miss them a lot. I have not yet met that community in Baltimore, but I have met some really great developers at local PHP and WordPress meetups. I have been especially lucky to meet one woman who has welcomed me to Baltimore with open arms, sent great jobs my way, and shares her office space with me!

For the most part, when I work with other internet professionals (designers, developers, consultants, marketing people, copywriters, etc.), I have much less client contact than I do when I am working directly for a client. If I had my way, I would have a partner who takes care of the business and non-technical client management side of things all the time.

Challenge/Benefit #1 – Communication

When I was a new freelancer, I did not yet know about the client phenomenon known as “one more thing”. ”One more thing” is when a client thinks a task is very simple, when in fact it may take several hours or days to complete. “Can you just [insert complicated time-consuming job here]?”. I am often expected to do this for free, because it is part of the website that I am building for them. No, I can not just do that. It will add 3 days to the project time and cost $1000.

It is a skill to communicate to clients what is involved in creating the things they are asking for. In most cases, it is best not to be too technical because most people do not understand the jargon of web development. Why should they? By attempting to simplify things into terms that a client can understand and relate to, the amount of time and work necessary to complete a project can seem like it would be much less than it actually is.

I like to have honest relationships with my clients. I do not generally ‘read between the lines’ and I never speak between them. I am autistic. My communication skills are limited, yet for the most part, my clients seem to like and respect me a great deal. Some will become frustrated with me at some point or other due to a communication (or lack of communication) issue, but all have appreciated my honesty, attention to detail, and dedication to giving them the best site possible within their budget.

Challenge #2 – Organization

Every morning, I look at my todo list, get overwhelmed, and start my work day. The list is always long. I use software to prioritize tasks and to view them in very focused ways. Otherwise, I would not have any idea what to do first. If I have to think, I am doomed to spend hours in a state of confusion while rapidly alternating between hundreds of things for 30-60 seconds each. Very bad for productivity to say the least.

Challenge #3, Benefit #2 – Hyperfocus

When I am not serially uni-tasking at rapid speeds, I can usually be found doing the exact opposite, hyper-focusing on one thing for hours at a time, usually code. In general, this serves me well, but sometimes there is a need to come out of the code and attend to something else. I find this very hard to do at times, to the point where I can not give my full focus and attention to something because I can not let go of the code. The amount of confusion that occurs while trying to shift can be very painful and disorienting to me and very annoying and frustrating to a person trying to pull me back.

Hyperfocus can also be a benefit when learning new skills. I work in an industry where there is a need to be constantly learning new technologies and keeping up with older ones. The ability to become so engrossed in something that it becomes all-consuming makes it much easier to keep up.

Benefit #3 – Helping Each Other

At some point, I would like to work with an autistic intern/apprentice and teach them the skills that I have learned in a way that they can understand and in an environment that they can be comfortable in. I have a similar wish to teach karate to autistic people someday.

In the past 5 years, the autistic community on the internet has grown exponentially and brought thousands of people together. This has expanded to “real life” communities, government action, education, and many other areas, but it is still not enough. It is our voices that will lead the way to a better future, whether those voices be vocal or assisted by a device or person. It is our voices that will allow us to reach out to one another, help each other, and share our unique views of the world with the people who’s world is sometimes a mystery to us. It is our voices that will tell the world that we have voices.

  1. Useless I have not been able to do anything today. No...
  2. Confusion, Rambling, and AASCEND I am so confused. About everything. One minute I think...
  3. Auties.org Donna Williams and some other like-minded folks have started a...

Exhaling Beauty: an Evening Celebrating Females on the Autism Spectrum

Exhaling Beauty by Kim Miller

Exhaling Beauty by Kim Miller

Last night, Karen and I attended Exhaling Beauty: an Evening Celebrating Females on the Autism Spectrum. The aim of the event was to share and showcase the talents, experiences, and spirit of the female ASD community. They definitely did that. I have never heard of another event like this and I am very thankful that they put on this amazing show and will be taking it on the road. It was really nice to be there with Karen, especially on the day that she passed her national social work license test. Congratulations Karen! :D

The show consisted of talks by authors Shana Nichols, Rudy Simone, and Liane Holliday Willey, and featured the artwork of Kim Miller.

Shana Nichols is a psychologist who specializes in working with girls on the autism spectrum. I don’t think there are too many other people in existence with this specialty. Hopefully she will start a trend! She spoke about girls growing up on the autism spectrum and some of the challenges they face. It was really amazing to hear about how she helps these girls to try and see the positive aspects of being on the spectrum and empower them to make the most of their skills and interests. It makes me incredibly happy to know that young girls will have the chance to be understood and taught to deal with living in the world on their own terms. I imagine it to be the polar opposite of how things were for many of us who did not grow up in a time where services like this existed. Shana is the author of Girls Growing Up on the Autism Spectrum: What Parents and Professionals Should Know About the Pre-teen and Teenage Years.

Rudy Simone is a jazz singer and the author of Aspergirls: Empowering Females with Asperger Syndrome, Asperger’s on the Job, and 22 Things a Woman Must Know: If She Loves a Man With Asperger’s Syndrome. Rudy’s presentation was called “Loving the Aspergirl life: How to navigate the challenges of adulthood and have the fulfilling, inspired life you were meant to”. She spoke about her life and many of the challenges that she has been through and how she ultimately pieced together her skills and talents to make a better life for herself.

Liane Holliday Willey was the last to speak. Her presentation was titled “Life Shared with ASD: A Journey of Challenges, Self-Acceptance, Forgiveness & Healing”. She told some heart-felt and personal stories about growing up on the spectrum, her current life and challenges, and some really amazing stories about her father, who also had Asperger syndrome, and how much he meant to her and taught her throughout her life. Liane is the author of Pretending to Be Normal: Living With Asperger’s Syndrome, Asperger Syndrome in the Family Redefining Normal: Redefining Normal, and Asperger Syndrome in Adolescence: Living With the Ups, the Downs and Things in Between.

Me and K had a really great time and met some great people, in particular a mother and daughter who travelled all the way from Missouri to see the show. The both seemed like really great people and it was nice to get to talk to them. It was also nice to meet the authors and Kim Miller.

  1. Project Spectrum Project Spectrum was created to give people with autism the...
  2. Excellent Asperger’s Article My friend d has written an excellent article about living...
  3. Perspectives of Autism from My Family I have been different from other people for as long...

Vote For The Autism Women’s Network Every Day In August!

Autism Women's NetworkPlease vote for the Autism Women’s Network (AWN) in the Pepsi Refresh Everything Project. I have been working with AWN since the beginning as director of web development and technical services and it is a truly awesome organization.

AWN is a unique organization that was founded by women on the autism spectrum. Our mission is to provide effective supports to autistic females of all ages through a sense of community, advocacy, and resources.

This month, AWN is taking part in the Pepsi Refresh Everything Project.

Please vote for us every day in August!

Goals

  • To organize 5 Workshops with focus on female specific autism qualities
  • To provide online support & mentoring for autistic females & families
  • To secure Autism Women’s Network as a non-profit organization

You can vote by texting 101500 to Pepsi (73774) once per day.

For more information and to vote online, head over to the AWN Pepsi Refresh page:

http://www.refresheverything.com/awn

You can also vote directly from this site. Click the ‘Vote for this idea’ button in the sidebar.

I got kind of confused when voting, so please make sure you vote goes through. You need to log in with your Facebook account or create an account on the Refresh Everything site BEFORE clicking to vote.

Thanks everyone! Please share this with anyone you know who may want to help!

Disclosure: Lori is the Director of Technical Services and Web Development for AWN.

  1. Vote For The Autism Women’s Network Every Day In September! Thanks to everyone who voted for AWN in last month’s...
  2. Don’t Give Up Yet! Vote for AWN in December! Last month, we were just a few places short of...
  3. Autism Women’s Network After 3 months of complete immersion, the Autism Women’s Network...

Autism Society Conference Keynote with Alex Plank

Alex Plank gave the keynote presentation at the Autism Society’s 41st National Conference on Autism Spectrum Disorders.

Alex speaks honestly and openly about being autistic and connecting with other autistic people online. His website, WrongPlanet.net, has been helping autistic people connect with each other since 2004.

Alex’s keynote is the first of 7 videos from the conference. The panel discussion also features Sandy Yim from the Autism Women’s Network.

All videos can be found on the Autism Society’s YouTube Channel.

Perspectives of Autism from My Family

perspective

I have been different from other people for as long as I can remember. Over the years, I have had many different diagnoses, opinions, and treatments that were not quite right. My parents have tried to get me help since I was a little kid, but no one really knew what to do with me.

I was a smart but strange kid. I didn’t understand things, especially people. I didn’t fit in. I thought school was dumb. I thought a lot of things were dumb. Turns out a lot of them are, but many were not as black and white as I thought at the time. It wasn’t until I was an adult that I began seeing shades of grey.

During my early years of school, I barely talked at all and spent a bunch of time in the principal’s office. My teachers and school psychologists thought I could be normal if I tried harder. If I would just be like the other kids, they would like me and wouldn’t be so mean to me. I just wasn’t “applying myself”.

It wasn’t until 5 years ago that I finally learned what is “wrong” with me. I have Asperger’s Syndrome. Autism. I sometimes wonder what would life have been like if we knew that when I was 3 instead of when I was 38? It is hard not to think of all the “if”s.

Would I have been a happy kid? Would I have finished college? Would I have never wanted to kill myself? Would my parents have had a happier and less frustrating life? Would they have had support and not had to figure everything out for themselves? No way to know and generally a bad place to take my brain.

For Autism Awareness Month, I would like to write about autism from the perspective of the people who are closest to me. They have been there for me through the best times and the worst. I think that acknowledging and documenting their experiences is an important part of increasing autism awareness and would like to thank them all very much for answering so honestly and thoughtfully.

I asked 5 questions each to my partner Karen and my parents Gloria and Ron (M&D). Here are their answers:
[Read more...]

  1. I’m Autistic: Another Awesome Video Response To Autism Speaks’ “I Am Autism” Responses to the the Autism Speaks’ “I Am Autism” video...
  2. Autism Myths #2 and #10 This post was inspired by an article written by Rachel...

Video: Autism Reality by Alex Plank

Autism Reality is a 10 minute documentary film about autism by Alex Plank. The film features interviews with Dr. Temple Grandin, Alex himself, and a handful of others including Alex’s parents.

This film shows a perspective not often seen in autism media by portraying autism as a reality which is neither good nor bad, just a different way that some people are wired.

Alex is the founder of WrongPlanet.net, one of the earliest and largest online communities for people on the autistic spectrum.

All Drupal All The Time – Too Bad I Can’t Breathe

Writing on the iPhone. Hard to breathe. Shaky. Strangely okay besides that. Sometimes writing helps. Been very busy lately. All Drupal all the time. Besides from the insane learning curve and non-intuitive UI, I am in awe of its power and flexibility. After more than 15 hours of video tutorials and reading tons of docs, I am finally understanding how it works and how the code is organized. I am learning while building a site for an awesome organization. Will link to it when it is done. If all goes according to plan, it will launch around Jan. 1st, 2010. Not mentioning the org. because there is a board and I don’t know if things like that have to be decided about, but if someone who knows the answer and wants to post it in the comments, go for it :) I haven’t used Drupal to build a site since version 4.1 other than keeping my test site updated. Been wanting to learn it for real for a few years so very happy to finally get around to it. Still, it makes me appreciate the simplicity and clean code of WordPress even more than I already do. Been having some small jobs besides from that.

Me & K went to Monterey for K’s 40th birthday and had an awesome time. Happy birthday K! We went to the Monterey Bay Aquarium to see the seahorse exhibit. It was amazing. We also saw lots of sharks and rays and other random sea creatures. We stayed overnight at a nice bed and breakfast and got home the next day in time to give Halloween candy to kids. Not so many kids this year.

Still hard to breathe but not so dizzy anymore. Sometimes it is kind of annoying to be me but most of the time I like it. Enough writing for now. I think it helped some.

  1. Review: The Curious Incident of the Dog in the Night-Time The Curious Incident of the Dog in the Night-Time is...
  2. Breathing, writing, and panicking in no particular order *****Disclaimer***** long rambling and moderate panic to follow but i...
  3. Quiet Time It is quiet here. K and B just went out...

Letter in Response to Autism Speaks’ Exploitative Practice

The Autistic Self Advocacy Network and other organizations representing the Cross-Disability Community are distributing this joint letter to the sponsors, donors and supporters of Autism Speaks following the organization’s latest offensive and damaging Public Service Announcement, “I am Autism“. If you are an organization that would like to sign on to the letter, please e-mail ASAN at info@autisticadvocacy.org before Close of Business Tuesday, October 6th, 2009. If you are an individual who would like to join ASAN’s upcoming protests of Autism Speaks in Ohio, New England, New York City and elsewhere across the country please e-mail ASAN at info@autisticadvocacy.org Thank you for your support and please feel free to distribute for additional signatories.

To the Sponsors, Donors and Supporters of Autism Speaks:
[Read more...]

  1. I’m Autistic: Another Awesome Video Response To Autism Speaks’ “I Am Autism” Responses to the the Autism Speaks’ “I Am Autism” video...
  2. Don’t Speak For Me Check out this awesome response to the exceptionally horrible “I...
  3. Autism Society Conference Keynote with Alex Plank Alex Plank gave the keynote presentation at the Autism Society’s...

I’m Autistic: Another Awesome Video Response To Autism Speaks’ “I Am Autism”

Responses to the the Autism Speaks’ “I Am Autism” video have been growing quickly. Here is another awesome video response to the tune of “I Am Woman” by Helen Reddy.

More Responses:

Don’t Speak For Me

Check out this awesome response to the exceptionally horrible “I Am Autism” video by Autism Speaks. Link leads to Mike Stanton’s Action For Autism blog with video and commentary.

This video is just one part of Autism Speaks’ crusade to educate the world about how horrible autistic people are and how they will destroy the happiness of anyone who crosses their path.

If you haven’t seen the Autism Speaks video, it is exactly the same as this one except for the audio, which is almost the complete opposite. Lyrics are below.

A list of responses to the Autism Speaks video
is being compiled at I Speak of Dreams.

I… Am… Autism… Speaks…

I am Autism Speaks…

I am invisible to your children. And I will be invisible to you until it’s too late.

I know where you live. And guess what? It’s no use hiding.

I have my eyes on all of you… I am watching you all.

I am Autism Speaks.

I have no color… no religion… no morals… no love….

I speak the language of despair and disease. And with every voice I steal. I grow stronger.

I work quickly to make people believe your children are suffering worse than cancer or AIDS victims.

I am Autism Speaks.

And if you’re happily married… I’ll distroy your marriage with unattainable dreams and broken promises.

Your money will fall into my hands… And I will bankrupt you… And pay myself hundreds of thousands of dollars a year.

I don’t sleep… And I’ll make sure you don’t either.

I will make it virtually impossible for you to leave your home without feeling the shame of diseased children.

I am Autism Speaks.

You have no defense against me…

Your advocates don’t have the money to fight me. And I relish your poverty.

I will make everyone think you and your children are diseased and disordered. And then… Turn on them.

I am Autism Speaks.

I have no interest in right or wrong.

I derive great pleasure out of your loneliness.

I will take away your hope.

I will rob you of your children and of your dreams.

I will make sure you will cry everyday.

You will wonder who will look after your children when you die.

And the Truth is… I… Do… Not… Care…

I am Autism Speaks.

And you are scared…

And you should be.

I am Autism Speaks.

You ignored me… And that was a Big mistake.

I am Autism Speaks…

And I speak in voices stolen from your children.

I am Autism Speaks.

Join the Protesting Autism Speaks “I am Autism” Video group on Facebook:

Don't Speak For Me Facebook Group - Protesting Autism Speaks

From Bev @ Asperger Square 8:

I Am Autism Speaks

Thanks to Turner & Kowalski for stirring things up.